The largest proportion of funding has been awarded to projects that improve services for all or more than one neurological condition, including services for carers. Direct investment was also made to projects for the following specific conditions:

• Acquired Brain Injury
• Cerebral Palsy
• Epilepsy
• Functional Neurological Disorder (FND)
• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)
• Migraine
• Multiple Sclerosis (MS)
• Parkinson’s Disease
• Progressive Supranuclear Palsy (PSP)
• Psychogenic Non-Epileptic Seizures
• Spina bifida/ hydrocephalus

A full list of projects funded through the Neurological Framework can be found here.

The aims contained in the document Neurological Care and Support in Scotland: A Framework for Action 2020 – 2025 are applicable to healthcare delivery across Scotland. Through this we have supported a number of national initiatives to improve care and reduce variation, including:

• Self-evaluation by all NHS boards against the General Standards for Neurological Care and Support 2019. Development of national care pathways for headache and Functional Neurological Disorder, with care pathways for further conditions in development
• Agreement of a Business Case and funding to adopt the Scottish Epilepsy Register across Scotland, improving the safety and quality of care for people with epilepsy
• Development of a neurology nurse specialist competency framework
• Formation of collaborative improvement networks which include NHS boards, Health and Social Care Partnerships, third sector organisations and people with lived experience to encourage consistent adoption of the successful approaches funded through the Framework
• Development, by third sector partners, of a toolkit for the consistent commissioning of social support for people with epilepsy
• Improved provision of public information on individual neurological conditions through the development and/or revision of 23 NHS inform webpages
• Through national charities, development of nationally-accessible sources of self-management support for people with MS, spina bifida hydrocephalus, progressive supranuclear palsy, cerebral palsy and non-epileptic seizures
• Re-development of the internationally recognised neurosymptoms.org web resource to support people with Functional Neurological Disorder
• Dissemination of nationally-accessible clinician education resource for ME/CFS

I refer the member to the answer to question S6W-33241 on 24 January 2025. All answers to written parliamentary questions are available on the Parliament’s website, the search facility for which can be found at https://www.parliament.scot/chamber-and-committees/written-questions-and-answers

Screening Oversight and Assurance Scotland, supported by the work of an expert advisory group and led by the Director of Screening, is currently developing a business case for implementation of targeted lung screening. This is expected by the end of this winter, and will consider the matter of incidental findings. Following receipt of the business case, the Scottish Government and delivery partners across the NHS will have greater scope to make an evidenced-based assessment of implementation timescales.

The roll-out of any screening programme is a complex undertaking, and the UK National Screening Committee acknowledged in its recommendation that there remain a number of significant issues that must be worked through before a full programme of lung screening can be implemented. This means a national screening programme is likely to take years rather than months to implement.

In the meantime, lung cancer remains a national priority. The Scottish Government has a dedicated chapter in our £114.5 million National Cancer Plan, and in December 2023 we redesigned lung cancer diagnostic services to help ensure patients receive faster access to treatment.

The commitment in the Stroke Improvement Plan to publish a plan for further development of the national thrombectomy service in the second half of 2023 was published in December 2023, available at: Thrombectomy Service Update and Expansion Outline

It should be noted that, since publication, the National Thrombectomy Programme Board has, on the advice of NHS National Services Division, moved away from an options appraisal approach in favour of maximising access to thrombectomy and a stepwise approach to service expansion.

Public Health Scotland (PHS) publishes annual data on 16 to 25 year olds with cancer in Scotland in their incidence statistics. The latest report is available on the PHS website

PHS also publishes information on cancer in children (ages 0 to 14) and young people (ages 15 to 24) in Scotland

Children and young people with cancer in Scotland 9 May 2023 - Children and young people with cancer in Scotland - Publications - Public Health Scotland

The draft budget published on 4 December 2024 includes new investment of £4.5 million to deliver new specialist support across the country for long COVID, ME, Chronic Fatigue, and other similar conditions.

The dedicated Cancer Strategy for Children and Young People in Scotland 2021- 2026 was published in 2021. This strategy emphasises the Scottish Government’s commitment to improving the distinct care and support services required for children and young people with cancer. Scotland is the only UK-nation to have in place a cancer strategy dedicated to children and young people with cancer.

Our draft Budget 2025-2026 includes a record £21 billion investment in health and social care services, including for services for children and young people with cancer.

The Managed Service Network for Children and Young People with Cancer (MSN CYPC) are currently working with Young Lives vs. Cancer (YLvC) to take forward learning from the NHS England and Picker Institute U16 Cancer Patient Experience Survey, to see if this can be developed for children and young people with cancer in Scotland.

Additionally, the MSN CYPC provides a range of patient experience support services such as the Youth Advisory Forum which provides children and young people with cancer with the opportunity to share experiences with each other as well as identifying gaps and improve the quality of services by providing feedback. The Parent, Carer and Families Forum, also facilitated by MSN CYPC, gives a voice to the youngest children with cancer, and their support networks which enables their views to also be captured.

Implementation and evaluation of the Collaborative and Compassionate Cancer Care The Cancer Strategy for Children and Young People in Scotland 2021–2026 is managed by the Managed Service Network for Children and Young People with Cancer (MSN CYPC).

Consideration will be given to an evaluation of the delivery of this strategy as it continues into 2026. Recommendations and actions are continually reviewed by MSN CYPC and the 2023-24 MSN CYPC Annual Report has been published on the MSN CYPC website – www.msncypc.Inhs.scot.